A Broken Heart

35,000 children are born with heart defects every year (American Heart Association)
Only 1% of those children have truncus arteriosus (many sources, including the Herma Heart Center where Turnip may be treated)
That means about 350 babies are born in the U.S. with the same condition as Turnip every year. (330 according to the Morbidity and Mortality Weekly Report from jan 6, 2006)
Surgery usually happens at 6-12 weeks (EPA, page 4)
15-50% of children require another surgery within the next five years (i.b.i.d.)
All heart valves are replaced after 12 years(i.b.i.d.)
Newborns with truncus arteriosus stayed in the hospital for an average of 30 days during 2003 (CDC, table 2)
The hospital charges for this stay (not including lab tests and doctor fees) ran to $200,000 (CDC, table 2)
In a small study published in 1996, 6% of infants died before surgery and 10% died during surgery (EPA, page 4)
In a national survey, 20% of newborns with truncus arteriosus died in the hospital in 2003 (CDC, table 1)

Friday, March 12, 2010

Herma Heart Center

Oliver and I drove to the Herma Heart Center for a check up on Monday. Everything looked good.

At 14 months from his due date, 15 months from his delivery date:

His oxygen saturation was 97%
He weighed 20#6oz (5%)
He measured 31.5 inches long (75%)
His noggin was 18 3/4" (75%)

Like his father, he's a long, lean fighting machine...with a really large head. "an orange on a popsicle stick." Of course, the long, lean body type is associated with kids who have had heart problems, as well.

His development ranged from 13 months (fine motor skills) to 17 months (language skills). So, he's right on track there as well.

Oliver seemed to enjoy the "games" OT, PT and speech played to assess him. Even more, he enjoyed running around the hospital...especially, when he found the yellow poles.