A Broken Heart

Incidence:
35,000 children are born with heart defects every year (American Heart Association)
Only 1% of those children have truncus arteriosus (many sources, including the Herma Heart Center where Turnip may be treated)
That means about 350 babies are born in the U.S. with the same condition as Turnip every year. (330 according to the Morbidity and Mortality Weekly Report from jan 6, 2006)
Treatment:
Surgery usually happens at 6-12 weeks (EPA, page 4)
15-50% of children require another surgery within the next five years (i.b.i.d.)
All heart valves are replaced after 12 years(i.b.i.d.)
Newborns with truncus arteriosus stayed in the hospital for an average of 30 days during 2003 (CDC, table 2)
The hospital charges for this stay (not including lab tests and doctor fees) ran to $200,000 (CDC, table 2)
Mortality:
In a small study published in 1996, 6% of infants died before surgery and 10% died during surgery (EPA, page 4)
In a national survey, 20% of newborns with truncus arteriosus died in the hospital in 2003 (CDC, table 1)

Monday, July 12, 2010

Tuesday, July 6, 2010

social skillls

We frequently see one of my friends and her 8 month old daughter. Oliver loves his little friend. He even has a word for her and he calls my friend "mama" (although that's not too remarkable as he calls all sorts of people mama). Sunday he spotted them at church, crawled out of our pew, ran over to theirs crawled up on their bench and tackled his little friend with a great big hug. Then he stuck his little wiggling fingers under her chin and said, "diggle, diggle, diggle, diggle, diggle, diggle, diggle" (translated: tickle).

language

Oliver continues to learn new words, both spoken and signed. He also continues to delight us with his perverse sense of humor. His new words all concern things in which he has a big interest: popsicle (spoken), popcorn (spoken and signed), bee (signed and sound effect), flower (signed), chocolate (his very own sign), balloon (spoken), tickle (spoken), butterfly (signed), seal (signed), help (signed and spoken), sister (sounds more like dih-dih), duck (spoken), bus (spoken), and lots of animal noises--camel, lion, gorilla (noise and sign), bear, fish, wolf, monkey, seal--and then there is his sense of humor. Whenever we look at the picture of a bunny on his sister's wall, he still says "arf - arf." Whenever he sees his dad, he says, "mama" and this morning after crawling in our bed (big sister helped him out of his crib), he tapped me on the chest and said, "papa" then got the biggest grin on his face. He has also started nodding his head -yes- which is almost too cute for words. I'll try to capture a video.

I love my blankie