A Broken Heart

35,000 children are born with heart defects every year (American Heart Association)
Only 1% of those children have truncus arteriosus (many sources, including the Herma Heart Center where Turnip may be treated)
That means about 350 babies are born in the U.S. with the same condition as Turnip every year. (330 according to the Morbidity and Mortality Weekly Report from jan 6, 2006)
Surgery usually happens at 6-12 weeks (EPA, page 4)
15-50% of children require another surgery within the next five years (i.b.i.d.)
All heart valves are replaced after 12 years(i.b.i.d.)
Newborns with truncus arteriosus stayed in the hospital for an average of 30 days during 2003 (CDC, table 2)
The hospital charges for this stay (not including lab tests and doctor fees) ran to $200,000 (CDC, table 2)
In a small study published in 1996, 6% of infants died before surgery and 10% died during surgery (EPA, page 4)
In a national survey, 20% of newborns with truncus arteriosus died in the hospital in 2003 (CDC, table 1)

Thursday, June 7, 2012

Lab work

Today, small boy had to have blood drawn.  Since he has been on blood pressure medication his entire life, his doctor thought it wise to check small boy's kidney function. 

We are fortunate that this was his blood draw--and Oliver did fantastic!  He sat on my lap, watched the ladies tie off his arm, squeezed the little vial they gave him, and commented "there's blood coming out."  He didn't even twitch when the needle went in.  It think the worst part for him was taking the bandaid off afterwards--and he did that all by himself as well.