I wanted to know:
1) Who I should go to for the opinion: a cardiologist or a cardiothoracic surgeon.
2) Where I should go to get a second opinion not only about the course of small boy's treatment but also about the reputations/successes of the two potential surgical programs in our home state.
3) What our insurance would cover.
Small boy's cardiologist called back this evening. It seems as though the treatment plan and timeline are both in flux. While the initial recommendation, based on small boy's echo findings, was for surgery this summer, the stress test has complicated matters. Now small boy's cardiologist and the surgeon with whom he works most closely think it MIGHT be best to revert to the waiting game. It all really depends on what small boy's pending MRI shows. If it shows that his heart is enlarged, but the walls of his heart are still a normal thickness and the blood seems to be flowing through adequately, then small boy will start getting echos every three months. It turns out that kids tend to tolerate having an enlarged heart pretty well. However, if the walls of his heart appear to be thinning or the blood flow looks troubling, then we'll jump on board the surgery wagon!
The cardiologist recommended consulting with a cardiologist and suggested the Mayo clinic and Michigan as good places to consult.
I'm waiting to hear back from the insurance company.