After small boy's echo and cardiology visit in early June, he got sent for a stress test with doppler echo, and then a cardiac MRI. Long story short: it looks as if he will be getting a new heart valve for his birthday this year.
I had hoped to avoid the blood thinners for a while longer--at this point mostly because he still occasionally has some really scary nose bleeds.
His new valve won't change his activity restrictions as we've already adopted the guidelines that he will be on after he gets a mechanical valve. We may have to change our diet to avoid some of our favorite foods that are high in vitamin K, though--like kale.
My chest gets all clenchy, my stomach ties in knots, and my upper arms get all tingly and hard to operate when I think about it. While typing this out, the area around my lips has gotten all tingly and I'm having a hard time convincing my fingers to hit the proper keys.